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Peninsula Kids
Home»Parenting Articles»What being a parent of a child with a rare disorder has taught me
Parenting Articles

What being a parent of a child with a rare disorder has taught me

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By Marcio Dias Lopez

Being a father has been an adventure. Eight years ago, my wife and I decided to have a child. Like most parents, this has been a huge learning experience for us. I remember the first moments with our newborn son in the delivery room, the routine checkup, the first bath, and my difficulty dressing that tiny new being in my arms. The thrill of introducing him to his mother for his first breastfeeding.

The news that rattled us

While still in the hospital we received the news that our son had a mucus-protein deficiency in the cells. This meant that he was ordinarily okay; however, if he ever became ill, he could not take regular medication. It then became very clear that we had a problem; how could we take care of our son alone without doctor’s support?

In this society, we have been taught to look for everything outside ourselves. We should seek everything from a ready-made recipe, be it a way to educate, or a way to care for someone. Like most new parents, it was about how to care for our child, with a form and structure of how to do it.

The first fever

Fifteen days after his birth, my son had his first fever. That was frightening. We responded by giving him a bath and keeping track of his temperature. Someone advised us to see an oriental medicine doctor. So, we made a decision and took our little baby to a doctor who was also trained in Eastern medicine.

I remember when I went to visit this doctor, and he greeted us with a smile and told us, “Be grateful for him; you have received a beautiful gift”. We had not yet understood what the doctor was talking about, as we could only see the impossibility of treatment by regular medicine as a problem. Everything began to clear in our minds when the doctor said that if we developed the ability to receive our child as a gift, everything would become easier.

He also said that our son was useful to nature, because he was alive and if he was not so, he would die, and this applies to everyone. The doctor also pointed out that we had to consider that everything that happens to a child during the day can get worse at night, and, also at night the doctors would be sleeping, so we would need to learn how to help him ourselves.

His advice that we would have to learn something more than general western knowledge about how to deal with a child made complete sense to us. Later on, research studies of oriental medicine came about, such as techniques for health treatments using massage, acupuncture, herbs, etc. We discovered other alternative techniques like biological body reading from embryonic tissues, body bioenergy and biomagnetism. We studied further, and trained ourselves differently from the traditional western perspective of medicine, and transformed the way we approach illness, health and healing.

Change of behavioural patterns

When my son was three, we were playing with him outside the house and we learned a great lesson from him. I had a sudden headache and an upset stomach; he came over and ran his hand over my head, and told me to calm down and that the pain would go away. He told me my pain, “likes agitation.” I looked at him with great surprise, I calmed myself as he instructed, and the pain disappeared. I observed from my son, that he was always calm, and never restless. We realised that he was never sick; he was always in good health. We came to understand that we could not heal those who were already healed. We realised that we could empower our child to realise which choices could contribute to his life, rather than controlling his diet, his clothing, and his playing.

Our son knows that he has choices, and that the choices that make his body lighter are those that will contribute to his life, and those that make his body contracted and heavy are the ones that will not be a contribution. These light and heavy things make sense in his world in order to be around people, his friends or even to choose something to eat or dress.

What did we learn from him?

That life is made of choices, and that our choices create peace or restlessness, lightness or heaviness in our body; and on top of this, that in life, there is no problem, no disease, but rather, a fixed point of view supporting it. He taught us that we do not need to seek anything outside ourselves, but instead, calm down and realise what is required from each moment.

We need to realise that there are many ways to assist our bodies and minds in a healing way that we often are not aware of. Upon realising this, we may even resort to something outside of ourselves, but to empower our body to balance and function as it was biologically designed to be.


Marcio Dias Lopes is a lawyer, bio-medic, and a professor at Pontificia Universidade de São Paulo, where he also gained his PhD and Masters in Social Relations. He is also a professor of Chinese Medicine and has held many positions in the area of integrative and complementary practices in the area of health and social wellbeing. As a facilitator of Right Voice For You, a specialty program of Access Consciousness, Marcio encourages others to step onto the stage of their life by embracing all their differences and different experiences, and use it to your advantage! www.marciodiaslopes.com.br

Peninsula Essence – Autumn 2020

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Hill & Ridge Community Market Nestled among the rolling hills and towering gums, the @hillandridgecommunitymarket is fast becoming a must-visit destination for locals and visitors alike. Held on the first Saturday of each month at the Red Hill Recreation Reserve, the market brings together a variety of stallholders showcasing the very best of the Mornington Peninsula and beyond. In 2024, the Red Hill Agricultural & Horticultural Society - proud custodians of the Red Hill Show since 1922 – embraced the opportunity to run the monthly market, ensuring it continues to thrive as a celebration of community, creativity and country life. From artisan breads and cheeses to handmade jewellery, clothing and homewares, there is something to delight every shopper. You’ll also find gourmet street food, coffee and sweet treats to enjoy as you wander through the bustling avenues of stalls. And of course, no visit is complete without supporting the local Scouts at their legendary scone stall, or grabbing a bacon and egg roll freshly cooked by the Red Hill Football and Netball Club. The Hill & Ridge Community Market is more than just shopping. It’s a place to meet friends, soak up the atmosphere, enjoy live music, and watch the kids’ faces light up with activities and entertainment. Families, foodies and curious browsers all find their place here. With free entry, easy onsite parking, and the warmest of community welcomes, it’s the perfect way to spend a Saturday. As the organisers say, it’s all about “good things in the heart of Red Hill.” The next Hill & Ridge Community Market runs from 9am–2pm on Saturday 1 st November at the Red Hill Recreation Reserve. https://www.hillandridgemarket.com.au/
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rIt’s our final Home Game in Frankston and it will be a Footy Spooktacular! 💥 Come watch the Hawks light up the field in an exciting finals contenders ladder battle PLUS take part in our Halloween festivities for all ages including: 🎃 HAWK-O-WEEN FUN ZONE (Opens 5 PM!) 👻 · Trick-or-Treating for all ages 🍬 · DJ spinning fright night hits 🎧 · Costume Parade on the ground at half-time! 🏆 · Spooky Styling: Face Painting, Hair Styling, & Airbrush Tattoos ✨ · Photo BOO-th and Roaming Entertainment 📸 Already have Halloween plans? Extend the fun, cheer on the team and join us from 5pm! Get your tickets now! 🎟️ Adults $15, Junior (Under 18) FREE https://www.ticketmaster.com.au/event/130062D7A6831FEB @hawthornaflw
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🎅🚨GIVEAWAY🚨🎅
Get ready, because Santa’s sleigh is making a very special stop this year…and it’s landing right at Caulfield Racecourse!

Melbourne’s Christmas Wonderland is an immersive, walk-through experience where every moment of Christmas has been beautifully brought to life. Every jingle, every bell, and every HO HO HO will create the most wonderful memory, reminding visitors of why the magic of Christmas is still the most prolific of all!

⏩⏩We have  1  family pass (4 tickets) for opening night, Friday 28 November, 7pm valued at $125!
Enter below by telling us which part of Melbourne's Christmas Wonderand you're most looking forward to? ✨⛸🤶🦌📮🏰
Be sure to be following both our Facebook and Instagram pages, too!

Running from 28 Nov - 24 Dec 2025 you can find more info at https://www.melbourneschristmaswonderland.com.au/
And tickets from: https://www.ticketmaster.com.au/

*winner will be announced in this thread on 30/10.
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🎅🚨GIVEAWAY🚨🎅 Get ready, because Santa’s sleigh is making a very special stop this year…and it’s landing right at Caulfield Racecourse! Melbourne’s Christmas Wonderland is an immersive, walk-through experience where every moment of Christmas has been beautifully brought to life. Every jingle, every bell, and every HO HO HO will create the most wonderful memory, reminding visitors of why the magic of Christmas is still the most prolific of all! ⏩⏩We have 1 family pass (4 tickets) for opening night, Friday 28 November, 7pm valued at $125! Enter below by telling us which part of Melbourne's Christmas Wonderand you're most looking forward to? ✨⛸🤶🦌📮🏰 Be sure to be following both our Facebook and Instagram pages, too! Running from 28 Nov - 24 Dec 2025 you can find more info at https://www.melbourneschristmaswonderland.com.au/ And tickets from: https://www.ticketmaster.com.au/ *winner will be announced in this thread on 30/10.
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Bluey will release its first Christmas music single, Bluey Verandah Santa, featuring new and original music from the global hit animated series, on 7 November 2025. The four seasonal songs from the series’ award-winning composer Joff Bush and The Bluey Music team will be released on CD and music streaming services, via BBC Studios’ record label Demon Music Group. Plus, three of the tracks will be pressed on Bluey Verandah Santa 7” White Vinyl.

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Bluey will release its first Christmas music single, Bluey Verandah Santa, featuring new and original music from the global hit animated series, on 7 November 2025. The four seasonal songs from the series’ award-winning composer Joff Bush and The Bluey Music team will be released on CD and music streaming services, via BBC Studios’ record label Demon Music Group. Plus, three of the tracks will be pressed on Bluey Verandah Santa 7” White Vinyl. The “Verandah Santa” track is available now on all streaming services. For Bluey music-themed activities and more, please visit the official Bluey website https://www.bluey.tv/bluey-music #bluey #verandahsanta
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Brand-New, Architecturally Designed Childcare Centre State-of-the-art learning for children 6 weeks to school years Trusted for Over 30 Years Locally owned and established since 1991 Limited placements remain Secure your child’s enrolment today For parents who want the very best, this centre brings together generations of experience and the Peninsula’s most dedicated educators Now Open - Book your tour today to meet the team (03) 5978 0808 enrolments@lgh.com.au 1408 Nepean Highway Mount Eliza 3930
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