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Peninsula Kids
Home»Parenting Articles»What being a parent of a child with a rare disorder has taught me
Parenting Articles

What being a parent of a child with a rare disorder has taught me

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By Marcio Dias Lopez

Being a father has been an adventure. Eight years ago, my wife and I decided to have a child. Like most parents, this has been a huge learning experience for us. I remember the first moments with our newborn son in the delivery room, the routine checkup, the first bath, and my difficulty dressing that tiny new being in my arms. The thrill of introducing him to his mother for his first breastfeeding.

The news that rattled us

While still in the hospital we received the news that our son had a mucus-protein deficiency in the cells. This meant that he was ordinarily okay; however, if he ever became ill, he could not take regular medication. It then became very clear that we had a problem; how could we take care of our son alone without doctor’s support?

In this society, we have been taught to look for everything outside ourselves. We should seek everything from a ready-made recipe, be it a way to educate, or a way to care for someone. Like most new parents, it was about how to care for our child, with a form and structure of how to do it.

The first fever

Fifteen days after his birth, my son had his first fever. That was frightening. We responded by giving him a bath and keeping track of his temperature. Someone advised us to see an oriental medicine doctor. So, we made a decision and took our little baby to a doctor who was also trained in Eastern medicine.

I remember when I went to visit this doctor, and he greeted us with a smile and told us, “Be grateful for him; you have received a beautiful gift”. We had not yet understood what the doctor was talking about, as we could only see the impossibility of treatment by regular medicine as a problem. Everything began to clear in our minds when the doctor said that if we developed the ability to receive our child as a gift, everything would become easier.

He also said that our son was useful to nature, because he was alive and if he was not so, he would die, and this applies to everyone. The doctor also pointed out that we had to consider that everything that happens to a child during the day can get worse at night, and, also at night the doctors would be sleeping, so we would need to learn how to help him ourselves.

His advice that we would have to learn something more than general western knowledge about how to deal with a child made complete sense to us. Later on, research studies of oriental medicine came about, such as techniques for health treatments using massage, acupuncture, herbs, etc. We discovered other alternative techniques like biological body reading from embryonic tissues, body bioenergy and biomagnetism. We studied further, and trained ourselves differently from the traditional western perspective of medicine, and transformed the way we approach illness, health and healing.

Change of behavioural patterns

When my son was three, we were playing with him outside the house and we learned a great lesson from him. I had a sudden headache and an upset stomach; he came over and ran his hand over my head, and told me to calm down and that the pain would go away. He told me my pain, “likes agitation.” I looked at him with great surprise, I calmed myself as he instructed, and the pain disappeared. I observed from my son, that he was always calm, and never restless. We realised that he was never sick; he was always in good health. We came to understand that we could not heal those who were already healed. We realised that we could empower our child to realise which choices could contribute to his life, rather than controlling his diet, his clothing, and his playing.

Our son knows that he has choices, and that the choices that make his body lighter are those that will contribute to his life, and those that make his body contracted and heavy are the ones that will not be a contribution. These light and heavy things make sense in his world in order to be around people, his friends or even to choose something to eat or dress.

What did we learn from him?

That life is made of choices, and that our choices create peace or restlessness, lightness or heaviness in our body; and on top of this, that in life, there is no problem, no disease, but rather, a fixed point of view supporting it. He taught us that we do not need to seek anything outside ourselves, but instead, calm down and realise what is required from each moment.

We need to realise that there are many ways to assist our bodies and minds in a healing way that we often are not aware of. Upon realising this, we may even resort to something outside of ourselves, but to empower our body to balance and function as it was biologically designed to be.


Marcio Dias Lopes is a lawyer, bio-medic, and a professor at Pontificia Universidade de SĂŁo Paulo, where he also gained his PhD and Masters in Social Relations. He is also a professor of Chinese Medicine and has held many positions in the area of integrative and complementary practices in the area of health and social wellbeing. As a facilitator of Right Voice For You, a specialty program of Access Consciousness, Marcio encourages others to step onto the stage of their life by embracing all their differences and different experiences, and use it to your advantage! www.marciodiaslopes.com.br

Peninsula Essence – Autumn 2020

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We are so excited to announce that our brand-new architecturally designed Little Grasshoppers centre in Mt Eliza will be opening its doors for tours.

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📢 Mt Eliza Grasshoppers Will Be Taking Bookings for Tours from 1pm Thursday

We are so excited to announce that our brand-new architecturally designed Little Grasshoppers centre in Mt Eliza will be opening its doors for tours.

With state-of-the-art learning environments for children aged 6 weeks through to school years, this purpose-built centre combines over 30 years of trusted experience with the Peninsula’s most dedicated educators.

✨ Limited to just 100 places, our new centre brings together generations of knowledge and a passion for nurturing children in our community — proudly locally owned and operated since 1991.

Tours will commence from Monday 8th September at 9am.

📞 Book through our website from 1pm this Thursday to secure your tour date & time https://www.littlegrasshoppers.com.au
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Phone: 03 5978 0808 | info@littlegrasshoppers.com.au

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📢 Mt Eliza Grasshoppers Will Be Taking Bookings for Tours from 1pm Thursday

We are so excited to announce that our brand-new architecturally designed Little Grasshoppers centre in Mt Eliza will be opening its doors for tours.

With state-of-the-art learning environments for children aged 6 weeks through to school years, this purpose-built centre combines over 30 years of trusted experience with the Peninsula’s most dedicated educators.

✨ Limited to just 100 places, our new centre brings together generations of knowledge and a passion for nurturing children in our community — proudly locally owned and operated since 1991.

Tours will commence from Monday 8th September at 9am.

📞 Book through our website from 1pm this Thursday to secure your tour date & time https://www.littlegrasshoppers.com.au
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Phone: 03 5978 0808 | info@littlegrasshoppers.com.au

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📢 Mt Eliza Grasshoppers Will Be Taking Bookings for Tours from 1pm Thursday We are so excited to announce that our brand-new architecturally designed Little Grasshoppers centre in Mt Eliza will be opening its doors for tours. With state-of-the-art learning environments for children aged 6 weeks through to school years, this purpose-built centre combines over 30 years of trusted experience with the Peninsula’s most dedicated educators. ✨ Limited to just 100 places, our new centre brings together generations of knowledge and a passion for nurturing children in our community — proudly locally owned and operated since 1991. Tours will commence from Monday 8th September at 9am. 📞 Book through our website from 1pm this Thursday to secure your tour date & time https://www.littlegrasshoppers.com.au OR Phone: 03 5978 0808 | info@littlegrasshoppers.com.au #littlegrasshoppers @little_grasshoppers1991
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⚪️⚫️🏏WOOLWORTHS BLAST⚪️⚫️🏏

Crib Point Cricket Club  have opened up Registrations for their popular Woolworths Blast sessions this Summer, with the first session kicking off in early January.

Last year saw fantastic numbers and an enthusiastic group of kidlets learning to play the game of cricket and the Club is hoping to grow those numbers even more this year.

Woolworths Blast is open to children aged 4-7 and a lot of fun. Simply jump on to https https://www.playhq.com/cricket-australia/register/6fcc29 and register. It’s that easy!!

* Junior Blasters Program
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Blast will kick off on Friday January 9th at Crib Point Recreational Reserve and run for 8 consecutive weeks.
⚪️⚫️🏏WOOLWORTHS BLAST⚪️⚫️🏏

Crib Point Cricket Club  have opened up Registrations for their popular Woolworths Blast sessions this Summer, with the first session kicking off in early January.

Last year saw fantastic numbers and an enthusiastic group of kidlets learning to play the game of cricket and the Club is hoping to grow those numbers even more this year.

Woolworths Blast is open to children aged 4-7 and a lot of fun. Simply jump on to https https://www.playhq.com/cricket-australia/register/6fcc29 and register. It’s that easy!!

* Junior Blasters Program
* For kids new to cricket aged 4-7 years of age
* 60 minutes of fun game based activities each session
* Parents join the fun!
* All equipment supplied
* All kids get their own Blasters Pack and wear the colours of their favourite Big Bash heroes
* Cost $99

Blast will kick off on Friday January 9th at Crib Point Recreational Reserve and run for 8 consecutive weeks.
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⚪️⚫️🏏WOOLWORTHS BLAST⚪️⚫️🏏 Crib Point Cricket Club have opened up Registrations for their popular Woolworths Blast sessions this Summer, with the first session kicking off in early January. Last year saw fantastic numbers and an enthusiastic group of kidlets learning to play the game of cricket and the Club is hoping to grow those numbers even more this year. Woolworths Blast is open to children aged 4-7 and a lot of fun. Simply jump on to https https://www.playhq.com/cricket-australia/register/6fcc29 and register. It’s that easy!! * Junior Blasters Program * For kids new to cricket aged 4-7 years of age * 60 minutes of fun game based activities each session * Parents join the fun! * All equipment supplied * All kids get their own Blasters Pack and wear the colours of their favourite Big Bash heroes * Cost $99 Blast will kick off on Friday January 9th at Crib Point Recreational Reserve and run for 8 consecutive weeks.
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DOWNLOAD FROM LINK IN BIO FOR YOUR CHANCE TO WIN! Winning entries will receive one of five family vouchers (family of five admission ticket) valued at $75 each to @ashcombemaze Email entries to info@peninsulakids.com.au or PM your artwork to facebook.com/MorningtonPeninsulaKids. Prize drawn on 14/11/2025. Winner will be notified by email. Prize must be collected from Peninsula Kids offices during office hours, 9am-5pm, located at 1/15 Wallis Drive, Hastings VIC 3915
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The countdown is on, school holidays are just around the corner and Acro Kids is the place to be! 22nd September – 3rd October in Mornington and Braeside. Reinvented full day programs designed for beginners to advanced skills, kids will learn wicked acro and parkour tricks and make heaps of new friends. Don’t miss out on the fun (and some time to yourself) book now to avoid disappointment – https://www.acrokids.com.au/school-holiday-program/ @acrokidsau #schoolholidays #springschoolholidays
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The Hawks are back in Frankston this weekend!

Get your tickets here:

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The Hawks are back in Frankston this weekend! Get your tickets here: https://www.ticketmaster.com.au/hawthorn-v-carlton-2025-nab-aflw-season-10-frankston-23-08-2025/event/130062D7A58C195D Please Note Junior Policy: Children aged 0-17 as at 1 January 2025 are entitled to enter the ground at no charge; however, they must hold a valid ticket for entry. Persons aged 18 and over as at 1 January 2025 are classified as an adult. @hawthornaflw Hawthorn FC AFLW #aflw #kineticstadium #frankston
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Robots and magic and slapstick… oh my!

Following appearances on Sesame Street, Universal Kids, and on The Tonight Show with Jimmy Fallon, Mario the Maker Magician heads to Frankston next school holidays.

Contagiously upbeat and full of heart, the ever-endearing Mario leads you through a romping explosion of energy and belly laughs punctuated with moments of heart and emotion that will catch you by surprise. Not "just a kids show", this is an all-ages theatre experience!

Prepare for a world of vaudeville and magic, cardboard and robots, science and innovation, instilling a positive message that will last in the minds and hearts of all audiences.

“The best kids’ magician in the world!!”- David Blaine
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MARIO THE MAKER MAGICIAN
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Tuesday 23 September, 2pm
Tuesday 23 September, 6pm
Wednesday 24 September, 10.30am (Relaxed Performance)
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Tickets: $20 (Family of 4: $75)

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Robots and magic and slapstick… oh my! Following appearances on Sesame Street, Universal Kids, and on The Tonight Show with Jimmy Fallon, Mario the Maker Magician heads to Frankston next school holidays. Contagiously upbeat and full of heart, the ever-endearing Mario leads you through a romping explosion of energy and belly laughs punctuated with moments of heart and emotion that will catch you by surprise. Not "just a kids show", this is an all-ages theatre experience! Prepare for a world of vaudeville and magic, cardboard and robots, science and innovation, instilling a positive message that will last in the minds and hearts of all audiences. “The best kids’ magician in the world!!”- David Blaine "Magic with a soupçon of science." - The New York Times "Instant and infectious chaos in the best possible way" - One4Review MARIO THE MAKER MAGICIAN Frankston Arts Centre Tuesday 23 September, 2pm Tuesday 23 September, 6pm Wednesday 24 September, 10.30am (Relaxed Performance) Wednesday 24 September, 1.30pm Tickets: $20 (Family of 4: $75) Book at thefac.com.au or call 03 9784 1060 Frankston Arts Centre @the_fac #frankstonartscentre #magic #familyshows #thingstodowithkids
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